Epilepsy and adhd at school

Hello, I’m new here and hope I am posting this question in the right place?!
My son was diagnosed with epilepsy in June 2022, but was struggling for at least a year beforehand. He’s 11 years old. He has focal seizures which are not yet managed, we’re on his 3rd set of medications. School has been a nightmare for him and I feel that he does have adhd symptoms related to his epilepsy because of his struggles with concentration and behaviour. His school however have said that they would not consider diagnosing or even looking in to him having adhd because of his epilepsy diagnosis. I’m feeling frustrated that we cannot access the help he needs at school because if this. Has anyone else had this experience please or have any advice about how to pursue this? Many thanks.

Hi Heidi,

Thanks for posting and yes you have posted in the right place. :slight_smile: I’m so sorry to hear about your son’s recent diagnoses and the challenges you have both been facing since. It’s scary for anyone involved and it sounds as if you don’t seem to be getting the support you would like either.

Do you mind sending this enquiry over to our helpline helpline@youngepilepsy.org.uk ? We can have a more in-depth chat on there and I can forward you over some resources that might be useful. :slight_smile:

Thank you!