Welcome to The Hub - READ ME FIRST!

Welcome to The Hub, this is your space to talk about all things epilepsy.


Whether you are a young person who has questions about living with epilepsy and how it is affecting you, you want to ask others how they deal with different situations, or you want to come and share your story. The Hub is the place to do that.

This is also a space for parents of children with epilepsy to come and support each other as well. Whether you want to ask a question, tell others about your experience, or want to support other parents, The Hub is for you too.

So what are you waiting for - check out The Hub , introduce yourself, tell us a bit about you, and get answers to all those questions you’ve always wanted to know the answers to - chances are if you’re wondering about it someone else here will be as well!

Guidelines for using The Hub

To help keep this a safe space for everyone, we’ve got a few rules for everyone here. Please read our guidelines to help keep The Hub a friendly place for our community to discuss epilepsy related topics, and other issues of interest to our community members. We ask everyone to follow these guidelines when signing up. Take a moment to read them and let us know if you have any questions by contacting a moderator.

Be polite and kind: Think about whether this is something you would say to someone in real life, and how what you write here could make other people feel. If it could be seen as rude, offensive, be harmful to others, or contains hate speech – just don’t post it.

Think about how your words could affect others: Don’t post anything indecent, sexually explicit or anything which could cause harm, hurt or upset to other users of The Hub.

Respect other boundaries: People visit The Hub for different reasons, please don’t harass or excessively contact another user. If they don’t respond to you, they may not want to and that needs to be respected. Do not give away information which can identify others, and don’t impersonate another person.

Respect The Hub: Don’t post spam here. Please don’t promote products. Please think about any links which you post. Harassing, threatening, abusive, vulgar, obscene, defamatory, or otherwise unlawful posts are not permitted. This also applies to links to websites that fit that description.

Don’t give unqualified advice: People on The Hub may have epilepsy, and may have questions about managing their condition. Please don’t give medical advice which you are not trained to give. Do not follow any medical advice received from fellow community users here, but speak to your epilepsy doctor.

Respect others: If you don’t agree with someone or have a different view, and are wanting to engage in a conversation with them, think about how you do this. Don’t make personal attacks, or be rude or abusive.

Keep safe: Don’t give out your personal details to other people on The Hub. Keep your conversations here, rather than taking them to another space either online or offline.

Speak up: If there is behaviour on The Hub, or someone does something which makes you feel uncomfortable, please message a moderator and bring it to our attention. We are here to make sure that everyone is using The Hub as a safe community space.

Don’t be afraid to flag it: If you see something which you think doesn’t stick to our community guidelines, or which worries you, then just press the “flag” button at the bottom of every post, and our moderators will review it. We would rather you flagged things you weren’t sure about as it gives us a chance to review, so please don’t be afraid of pressing that button.

The Hub is not a crisis service and we ask all members to use The Hub safely and reach out for other forms of support if they think they might need urgent help. There are places you can go:
Young Minds: Crisis Messenger, text YM to 85258 (24/7)

Childline: Call 0800 111 or via 1-2-1 chat (7.30am and 3.30am every day)

Samaritans : Call 116 123 (24/7)

Saneline: 0300 304 7000 (4.30pm–10.30pm every day)

The Mix: Under 25’s - 0808 808 4994 (Sunday-Friday 2pm–11pm)

Campaign Against Living Miserably (CALM) - If you identify as male, call 0800 58 58 58 (5pm–midnight every day)

Shout: Crisis Messenger, text ‘SHOUT’ to 85258 (24/7)


This space is moderated by Young Epilepsy - and we are here to help you. If you have any questions or need any support you can message any one of our moderators. @Chloe-YE @Charlotte-YE @Prudent-YE

Requests for posts to be reviewed

If there is something on here that you think we need to know about, all you need to do is “flag” it by clicking on the little flag icon at the bottom of every post. That will alert one of the moderators who can review the comment. Options will include: no action necessary, removing the reported post and replacing with a message that says that the post has been removed by a moderator, removing the entire thread and, for users who persistently break Young Epilepsy’s The Hub Policy, banning the user from The Hub. Decisions by Young Epilepsy’s moderators as to which option to take will be final.

Please do not abuse the “flag” button. The “flag” function is there to ensure that forum users have the means to report inappropriate content. Although the staff who look after The Hub will attempt to remove all posts which go against our guidelines, we cannot guarantee we will see and review everything. If you see something that goes against our guidelines, please flag it.

If you have any questions about a decision that a moderator has made please email TheChannel@youngepilepsy.org.uk

Acceptance of this User Policy and Guidelines

This User Policy and its Guidelines should be read in conjunction with our Disclaimer, Data Protection and Privacy Policy.

By accessing and using The Hub, you are acknowledging you have read, understood and accepted this User Policy. If you do not agree to be bound by this User Policy and the Guidelines, please cease to access The Hub. If you fail to observe any of the provisions of this User Policy or the Guidelines, we reserve the right, at our discretion and without notice, to remove or edit any messages you may have left on a The Hub and/or to exclude you (either temporarily or permanently) from The Hub and/or terminate your access to all or any parts of this website, depending on the nature and severity of your breach.