How can you deal with having epilepsy and still be controlled by your own family and try get a working job ? I’m a 22 year old lad who suffers from epilepsy. I feel controlled by my mother by attorney and feel I can’t get out
I’m so sorry to hear about the challenges you are facing both with your family and seeking employment due to your epilepsy. I can totally relate to your frustration, especially when you’re in your early 20s and you want to thrive and have your independence.
I guess it’s different for everybody and you may have done this already, but the first thing would be to have an open and calm conversation with your family, explaining how you are being affected by their actions. Most of the time, this ‘control’ stems from fear and wanting the best for you, so if you explain that it may be making some things worse, it might be a good starting point.
The second thing, which really worked for me, was taking every measure possible to make sure you are safe, and letting them know. Things like epilepsy wearables and alarms, carrying an ‘I have epilepsy’ card for when you go out, making sure that the people you are with regularly outside the home know what to do when you have a seizure. This will hopefully make them feel at ease and also encourage your independence.
In terms of employment, have you started applying to jobs and not having much luck, or are you concerned about which route to take in the first place because of your seizures?
I hope this helps
Even after I talk to them they still don’t change so I’m stuck . I feel I’m at the point of breaking and in silence.
So sorry to hear all of this. It must be really difficult for you. Have you tried getting your neurologist or GP to have a chat with your mum or try to get your mum to talk to other parents with children with epilepsy. More than happy if your mum wants to chat with mine. I have epilepsy and fortunately for me my mum was the oppsotie